It’s been a tough day and will be a tough night. Now we’re running through the scenarios of how our perfectly healthy boy’s life could be forever changed. How do you tell friends and family that you gave your kid hearing loss. A quick google search tells you this was wrong… also common sense. We are trying to reassure ourselves that we don’t know anything yet and to not jump to conclusions but it’s impossible not to feel extreme guilt. We’re confident that is was in the 80-85 db range at least some of the time. I’m forever shamed to say that we had the speaker very loud and close to his ears. Everyone I’ve talked to says it’s extremely unlikely that we’ve damaged his ears and that no ones ever heard of such a thing happening and to think about how our parents exposed us to parties and loud noises all the time back in day… but maybe we’re the extreme case. My wife and I are very upset thinking the worst. Today we’ve been doing our own tests by making loud noises when he’s asleep and awake and nothing. In the meantime, I’m hoping some parents have some experience or knowledge with noise-induced hearing loss. We’re calling to schedule a hearing test on Monday to see. Reflecting on this as I type it out brings me guilt and shame. I can’t believe I’ve endangered my son with such neglect and counter-safety practice. I’m the calm, collected parent who usually does the appropriate research before making any rash decisions. I’m having a hard time with living with myself today. We tested the volume of the approximate volume we’ve used and I feel confident that I’ve put it around 80-85 decibels (can’t tell for sure) regularly for prolonged periods which is in the dangerous range for volume. My MIL just questioned it today and my wife looked it up and we’ve now learned that this practice is dangerous and could cause hearing damage. My wife questioned if it was too loud early on but convinced her that it is what was recommended. The aim of this study is to contribute to a better description of the genotypic and phenotypic spectrum of DFNA6/14/38 and aid in counseling future patients identified with this variant. I read somewhere that the baby will sleep best with white noise at a volume of a vacuum or blow dryer. My LO is 6 weeks old and we’ve been using a portable speaker in his crib to play white noise at a high volume whenever he sleeps since pretty much his birth.
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